Philosophical insight from my French compadre…
Drix: I can’t compare my stupid hepatitis to your broken neck, live was nice with me, but when I felt like dead because all my nervous system was fucked, I used to think that at least I can make people happy sometimes, and that made me forget that my body was broken too.
The most ridiculous is that when I finally cured, I felt completely empty because I needed to “fight” something…
…and I feel like I’m still looking for my big “fights” or accomplishments.
I wonder if at the end life is not simply made to “fight” and improve things, wherever you come from.
Me: I think you area great philosopher, that’s one of the reasons I like you so much. I agree,, like for me life is about the challenges, I feel more alive since the accident because the “fight” has been harder. Luckily for me, my fight is unlikely to get much easier.
Challenges at the moment revolve around inconsistent care which causes health risks and reduced productivity which is difficult when trying to manage work and life responsibilities.
I usually try to get help with care coordination from the agency but this is not happening currently (it is mostly managed quite well).
A two-week lapse in physiotherapy (informal through carers and formal through physiotherapists) is showing an unsettling increase in spasticity and discomfort. This illustrates the critical nature of regular physiotherapy for tetraplegics which goes unacknowledged by the healthcare system (specifically continuing care groups).
Part of the cause of care inconsistency has to do with the job being difficult and not substantially rewarded (rates are very bad with consistent downward pressure from funding providers), therefore good PAs become disenchanted and leave after gaining valuable experience (creating a skills vacuum).
Films to see:
Untouchables 2011 (French subtitles)
The Sessions 2012