Carer of the year

One of my assistants, Lauren, who is reliable and keeps everything working, was awarded with the regain charity carer of the year award for the following nomination:
Lauren has been a reliable and selfless carer, putting herself out consistently to make my life manageable and enjoyable. She seems to have endless patience and is always looking at ways to improve processes to save time, money and improve general health. She is tactful and strikes the balance between being a close friend and professional carer perfectly. I can enjoy my time on my own with Lauren as if it were with a close friend. Flexibility is also strong point, on various occasions when my support worker has been unable to attend work, Lauren has taken me and performed unfamiliar tasks at the latest of notice. This level of cooperation is far above that which is demanded by how Lauren is rewarded, it enables me a high standard of living and I would like to show my appreciation in any way I can.

On a completely separate note, I went to see a brilliant concert with one of my favourite hip-hop artists Mos Def. I thoroughly enjoyed it but was reminded how sometimes it’s impossible not to feel lonely when something significant sets you apart from others. We can only relate to what we can relate to.

Laurent Garnier is helping me to try to get into a dance festival and not be isolated away from my friends with a single accompaniment in the disabled “enclosure”. A big thank you to him and Marc Gordon!

fundraising and the exuberant trust

If anyone is in Oxford or surrounding areas in May and June they should definitely check out some of the performances that the exuberant trust is putting on. These are the creations of the exuberant trust and Susie Crow and Ellen (Stewart). More information at

the off road wheelchair is still in development, the addition of the head control and require design changes has resulted in slightly elevated costs and so I’m back to fundraising for the extra £3000. I’m still hoping this will become a reality by the end of the summer, it’s going to be an incredible feeling being able to trundle around the country at a decent speed. I’m hoping some beach excursions may also be possible.

We are back from an incredible trip to Scotland, Essex and Ripon (to see John-Ellen’s dad, my aunt’s family and my grandmother, my uncle’s family all respectively). It was really great to see all the family, John’s house has been made very accessible and he is going to make it available as a wheelchair accessible holiday location in Scotland if anyone is interested.

Enjoyed a festive royal wedding at Stoke Mandeville hospital where Jamie Buckingham arranged the celebrations.

Best wishes to all, below are the details for the exuberant trust performances


Commedia Season Programme