pavilion progress

I have been busy recently, too many little things to chase up on top of work.  Work is starting to get very interesting as project funding has now been cleared and the project manager is getting things going.  We are now at the head scratching phase where we plan implementation and architecture steps, and it’ll be quite a long phase due to the complexity of the project.

Waiting in anticipation for the new fancy wheelchair to enable me at work, trying to organise the pavilion with all the connectivity needed for me to work efficiently.

The parents of Ben Padfield, a friend of whom I have great memories of playing with him and his sister, Muna, running around fields near their home chasing each other, have kindly donated a large amount of money for a sound system in the pavilion.  Ben sadly passed away long before his time, he was very sharp and had a keen interest (and good taste in my opinion) in music.  In Ben’s memory, I have purchased an amazing sound system, mission m-cube’s, and a surround sound amplifier.  The speakers are very small and unobtrusive, keeping the aesthetically pleasing feel of the pavilion whilst providing powerful and good quality sound.  Working alongside Chris, our multitalented neighbour, we are going to rig up a complex system of trunking to hide the wires and keep the pavilion tidy.  I’m glad to report that the acoustics of the pavilion are very good due to the design by Peter Ruthven Hall. Thank You Ben, Alice, Nigel and Muna.  Please visit sometime.

I have been continuing to request funding for the ridiculously priced profiling double bed, but so far to no avail.  I will probably be trying to find private funds for it as I don’t think it’s fair on Ellen to have to wait so long.  I have a very generous offer from a friend to help with this.

I would like to thank everyone for their ongoing support and generosity, sometimes is quite overwhelming. I really appreciate the gifts over Christmas.

We have been having a very nice Christmas period with visitors and trips to the theatre, Oxford to catch up with friends, London to catch up with friends (yesterday I attended a university reunion which was great fun).

I have had some great care over Christmas, unfortunately having to change quite frequently which is difficult as it takes a lot of time for carers to get used to me and vice versa.  Thank you to Maria, Dell,Soo, Frank, Megan, everyone from Charterville, the reliable and incredibly efficient Suzi And Joy, my most recent and hopefully long-term live-in carer.  You all make my life liveable.

Ellen and I are enjoying living together and continue to feel very lucky to have such a wonderful place to live and such support of friends and family.

Best wishes to all

4 thoughts on “pavilion progress”

  1. Hello Tom
    We have a page turner that you’re welcome to have if you like? My brother hasn’t ever used it, so I’m quite sure he wouldn’t mind at all!
    Please let me know if you would like it.
    Thanks
    Karren

  2. Just to say how pleased I am that the work funding has come through and that you now have an interesting project to get stuck into. That’s such good news and a huge tribute to you and your carers.
    Warmest wishes
    Pat

  3. Dear Tom
    Excellent news about your contract being extended – mine is also!
    Always delighted to see more photos. Really liked the one with The Pavilion, Grandfather Michael’s House and Tom and Ellen’s place.

    Your request for a wheelchair in which you can stand up is of vital importance (please see attached article which I have at last scanned and will be sending to Whizz).

    “Le matin, quatre heures de préparation sont nécessaire, deux avec un kiné, deux pour la toilette et l’habillage. Trente minutes sur un vélo automatique, de la balnéothérapie et une heure debout, pour éviter les escarres, ostéoporose, activer la circulation du sang et le transit intestinal. On est fait pour vivre debout.
    C’est très cher d’être dépendant, un fauteil coûte 5000 euros, trois auxillaires de vie se relaient vingt-quatre heures sur ving-quatre.”
    Philippe Streiff – Magazine VSD du 2 au 8 mai 2007 (i.e. 17 years after his Formule 1 accident which left him tetraplegique).

    Yesterday as a birthday treat the family watched My Fair Lady (1964) with the handsome Rex Harrison and the sublime Audrey Hepburn. Seeing all the costumes made me think of Ellen – hope her job hunting is working out (?)
    Sincerely
    Marie

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